Thursday 9th - Saturday 10th April 2009
Nothing new to report.
Wednesday 8th April 2009
Hazel, son Dean and dogs have arrived from the West.
Hazel has offered to stay with Olive as a carer - she is free of obligations until September, when she must return to WA.
This is a very kind offer. Olive has company and someone to assist her in day to day activities.
We talk to Centrelink to formalise the arrangement.
Su returns to Melbourne.
Tuesday 7th April 2009
Excellent meeting with the ladies at Centrelink. Good support, very good advice.
Olive has bad back pains. Her GP's comments are that the pain is probably not related to the cancer, but cannot be sure without a CAT scan, which Olive declines. He prescribes Panadol Forte. Her back pain is slowing her down.
Saturday 4th - Mon 6th April 2009
Nothing new to report.
Friday 3rd April 2009
Nothing new to report.
Thursday 2nd April 2009
Nothing new to report.
Apointments have been made to talk to Officers at the Department of Health and Aging in Mackay on Tuesday.
Wednesday 1st April 2009
Nothing new to report
Rod leaves for Melbourne for long standing dental appointment.
Hazel is driving over from Tom Price - she should get to Mackay around Friday April 3rd.
Tuesday March 31st 2009
Nothing new to report
Monday March 30th 2009
Olive is still off oxygen completely. Nothing else to report
Sunday March 29th 2009
Another good day yesterday and a reasonable night. Olive is now off oxygen completely.
Her cough is still bad, but seems to be bothering her less than before.
Went to Eimeo pub yesterday for lunch - caught up with Joan Strait, her old school mate.
Saturday March 28th 2009
Yesterday was a much better day.
We saw Dr De Silva. Olive told him she believes the pills are making her sick. She did not taken any pills that morning and feels much, much better.
After listening to her describe the symptoms, he reminds her that together they set the primary goal some time ago - to maintain the best quality of life. He says belief is very powerful, and if she believes the pills are doing her harm, then don't take them any more. Just stop taking them!
She is very relieved.
He tells her to take a holiday... he measures her oxygen level and tells her that it is 95% - normal. He then measures his own level and shows it to her - 95%. He says her oxygen level does not preclude her from flying.
"Take a holiday. Go somewhere"
He arranges for a new x-ray and subsequent consultation, for the end of April.
Olive spends the whole day off the oxygen. She is much better - less coughing, more energy, more spritely.
Friday March 27th 2009
A very bad night for Olive.
A frightening episode - she was choking and coughing. Don't know how long she will be able stay in the house - even with Su and I here.
She intends to stop taking the pills that make her nauseous and unwell. At least until she speaks with the doctor. We will see de Silva today at 12.30pm. "I am allowed to put my dog to sleep, but I'm not allowed to put myself to sleep" she said.
She is being assessed for the level of care that she needs by an ACAT team member this afternoon. They will almost certainly recommend that she no longer drives. That will be a real blow to her independence, albeit, she is no longer in any shape to safely control a vehicle.
I have cancelled our flights back to Melbourne. Hoping the insurance company will cover the costs.
I will return to Melbourne for some dental treatment of my own next Wednesday. I will be away for four days, but Su will remain.
Thursday March 26th 2009
A reasonable night for Olive, not too much coughing.
Today I saw her physician, Dr De Silva. Olive was suppose to accompany me, but she felt too unwell to go out. The pills she takes to ease her airways, give her bad stomach cramps, nausea and diarrehha. She takes other pills to ease these symptoms, but some thing is not right.
De Silva says her current symptoms are those of smoking related diseases (emphysema) - not cancer. His prognosis for her is around 12 months, but he emphasises that these are only estimates.
She will see him tomorrow.
Picked up the portable oxygen breathing pack today. This is a small bottle - about 400mm high but still weighs too much for her to cart around. Someone will have to carry it for her. So much for portable.
Many more people are saying they want to come to Mackay to visit her.
This is going to be difficult - she cannot cope. I am going to have to disappoint a lot of people and just say no.
Wednesday March 25th 2009
Last night, a nice birthday dinner was had by all.
Olive had many, many phone calls - thank you all for thinking of her. And particular thanks to Paul for the musical rendition.
David McLeod tells me he is planning to return to visit Olive from Italy around the end of April, to coincide with his birthday.
Many other people have also indicated that they would like to come to Mackay to visit her.
Because Olive tires so very easily now, my initial thought was to arrange a common date, based around David's visit, so that everyone could come along and we could have just one big gathering.
I suggested this to Olive, but she doesn't think she can cope with a large gathering of people, so this idea is on hold.
But I'm not sure that she will be able to cope with a large number of individual visits either.
I spoke with Doctor Green today. He says she will become progressively weaker with time.
So, I don't know what to suggest here other than if you want to come, make it sooner rather than later.
I am arranging a portable oxygen bottle backpack, so Olive can get out of the house. Her existing setup runs on mains power, with a large industrial size emergency bottle to hookup if the power fails.
Tuesday March 24th 2009
Happy Birthday Olive!! Olive is 84 years young today.
We are having a birthday evening at home with Alan and Colin-Mark Christensen.
Monday March 23th 2009
Olive needs oxygen frequently to assist her breathing and with the DVA having provided an oxygen machine today at her home, she was released from hospital this afternoon.
I spoke to her doctor this afternoon - news is not good.
She has a virilent form of lung cancer, that was not apparent in the xrays 12 months ago.
Apparently, it spreads very quickly.
Given her age and frailty, she cannot have radiation or chemotherapy. The doctors are simply providing palliative care to keep her comfortable.
The Doctor expects her timeframe is 4-5 months and suggests that she can no longer live unaccompanied any more.
Su and I intend to relocate to Mackay to look after her.
Friday March 19-20th 2009
No change.
Rod will be talking to the Doctors on Monday 23nd.
I will post information as it comes to hand.
PLEASE DO NOT RING HER IN THE MORNINGS - she feels better in the afternoons.
Please do not keep her talking too long - she gets breathless easily.
Wednesday March 18th 2009
Olive continues to use oxygen as required and has regular physiotherapy. She is also using different equipment to excercise her lungs.
PLEASE DO NOT RING HER IN THE MORNINGS - she feels better in the afternoons.
Please do not keep her talking too long - she gets breathless easily.
Tuesday March 17th 2009
Olive was admitted to the Mater Hospital in Mackay today, experiencing breathing difficulties.
She has been given oxygen to ease the air passages and has regular physiotherapy on her chest and back.
Chest X-Rays show a shadow on her lung. This is being investigated.
She has a direct line to her room - (07) 4965 5125.
Please keep the conversations short - she gets breathless easily.
PLEASE DO NOT RING HER IN THE MORNINGS - she feels better in the afternoons.
Rod and Su will be in Mackay on Sunday March 22nd and, depending on doctor's advice,
will endevour to take her home sometime after that.